Lucky me!!

Hey Kusum aka my Vibhu, my Pari….Yaar, today is our 12th Marriage Anniversary!! Happy Mariage Anniversary my life, my love….but Pari, this is not fair that you are not celebrating with me (though I know you are celebrating at God’s home)…..The issue is, missing you here soooooooo much….!!

Today, I am literally out of words and can’t express my feelings in words….however wish to clarify one thing that as you may know, when you left this physical world after fighting so long with cruel Cancer…..people have started to say me as ‘unlucky’…..Please note I am still the luckiest person in world (I felt it strongly)…..yes, still!!!  And you know why – Because, despite Cancer & struggle, I had one the most beautiful and incredible journey with you….Because, you allowed me to become your husband….Because, I got became part of a legendry fight of yours with stage 4 Lung cancer metastatic to brain, bones, who also helped to save so many other cancer patients lives…..Because, we had cherished love & only love, even with every moment of pain and struggle…..Because you & your life was and is remain source of inspiration, strength, love and hope for me and thousands & hundreds of people globally.

So please don’t be sad and enjoy our anniversary there….And if God can hear our love and our pain, plz tell him I am begging him for allow you to come back “Wapas aaja yaar…………..”

#Love #KusumVsCancer

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Our Mission in Life

Today, an article on our work for Cancer Awareness & Advocacy and on our mission in life, is published in renowned medical news portal MyMedicalMantra!! Link of article is presented below.

In memory & love of our Kusum and in-service of Cancer Patients & Mankind, we father-son duo will leave no stone unturned for awareness & advocacy of Lung Cancer, Cancer Research, Clinical Trials & Timely Access to Latest Treatment in India.

In this article, there is a mention about Taj Mahal..Suryansh & I have lot more to share about this so watch this space for my next blog about building Taj Mahal in memory of Kusum.

#Losing Is Not An Option
#Lung Cancer Awareness Month
#Rise To Survive Cancer
#Kusum Vs Cancer

http://www.mymedicalmantra.com/after-losing-his-wife-father-son-duo-make-cancer-awareness-their-mission-in-life/?fbclid=IwAR1DHjoy4GLvr38ejd7sdbnxqNMY9tuq-T_1wesLuS2kA5efsmZlVKUeMSY

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In love and memory of Kusum,

Vivek and Suryansh

KarvaChauth, Kusum and I

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Today, India is celebrating a unique, beautiful tradition or say festival called “Karva Chauth”. And I would like to share today about how my love, my life and my wife Kusum aka Vibha aka Pari and I have seen this festival, our relationship with “Karva Chauth”.

For my friends and blog followers abroad, “Karva Chauth” is a festival celebrated especially in Northern India, where married women ‘fast’ (without even drinking water) from sunrise to moonrise for the safety and longevity of their husbands. Today, I am not going into discussion why women, why not men, or scientific logic of this (which seems not though)……but yes, it is about KarvaChauth, Kusum and I.

On Karva Chauth, there was always that amazing feeling of love in air. This actually used to start a day advance of KarvaChauth when Kusum (as per tradition) used to put Mehndi (Heena) on her hands. And then we used to had most beautiful dinner of year…..a candle light dinner at home, romantic music on play….I was the one who feed dinner to Kusum with my hand, as her mehndi on hands were still wet so she cant eat food by herself. Eyes of Kusum speak so much that moment and every word was love, care and this beautiful relationship of husband & wife.

Then in 2012, she was diagnosed with last stage Cancer. That stupid girl still wanted to fast for me but Doctor did not allowed of her health and targeted therapy medication which cannot be given without food. Then I shared with Kusum, if Karwa Chauth has any power to longevity of life then I would like to fast for her. And I started this fast since 2012.

Every year, I used to fast for her long life and our love….Despite her poor health, we celebrated it with all traditions…She used to wear a Sari, mehandi, prayers, then long wait for moon. It never appeared on time HAHAHA. And you know, once children born, in our case Suryansh (our son), they become more exciting than us…Suryansh & all neighboring children keep asking each other “Has Moon rise (chand nikla kya?)?”….and once it came, a big shout everywhere “nikal gya chand (moon rise)”. Then opening of fast after looking at face of your partner and moon, through a mesh in presence of a diya (oil lamp).

But last year (2018), things were different…..Kusum had cough and we came to know that her cancer is progressing and lungs are chocking……..I don’t know why, Kusum became adamant to have fast herself for me…She called our oncologist and begged him for permission……….She has fast with full tradition last year. And I did fast for her….I jokingly challenged her that lets see whose fast has more power  but I forgot that she was such a beautiful soul and it seems God listened to her….I lost, She win…..She left me after few months!!

Today, its KarvaChauth again…….and I am missing you Pari sooooo much…..When I woke up….I was blank, not to understand what to do….I went to breakfast table as I have nothing to fast for now…..but sorry jaan, I was not able to eat…………..

So yes, I am fasting today again on KarwaChauth…..I am fasting for my kusum, my Vibha, my love…..also I am fasting today for all of you lovely couples out there…May God give you all love, long, happily married life and togetherness “Happy Karva Chouth

In love, memory of Kusum

Vivek

Sharing is Caring

I was invited to share #Patients#Caregiver #PatientAdvocate perspective, learnings & expereince and to present & record the same as training modules for Ministry of Human Resource & Development, Governmant of India 🇮🇳 

I did shared, presented and recorded on two very important areas in fight with Cancer:
1) ‘Caregivers in Cancer‘ &
2) ‘Cancer and Clinical Trials

I am honored to become part of this panIndia education drive.

hope that the struggles, expreince and learnings Kusum and I had and what we did differently in our fight with Cacner (I would say incredibly successful fight)…will guide and help millions of new Cancer patients & families in their fight and win against Cancer 🙏

#RiseToSurviveCancer 

#SharingIsCaring

In love and memory of Kusum 💕

Running For Cause

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It is 7 months now when our loving, brave Kusum (aka Vibha) passed away after surviving 7 years at stage 4 Lung Cancer (non-smoker) spreaded to Brain, Bones & so on

In honor & tribute to our fighter girl Kusum and to raise awareness of Cancer Research…..Suryansh & I, father-son duo has started running for this cause.

Sunday 1st September, was our first run for this cause at #DwarkaHalfMarathon. We both has talen pledge to continue to run in these running events to raise awareness for Cancer, Reasearch, Patient’s Voice and motivate other Cancer patients.

Hope these small setps will also help to create awarenss and advocacy.

#RunningForCause
#RunningForCancer
#RunningForKusum 💕

Best wishes,

Vivek and Suryansh

World Lung Cancer Day

On ‘World Lung Cancer Day’ today remembering & honoring my love, my wife “Kusum Malik Tomar” who was diagnosed with Stage 4 ALK Lung Cancer at young age of 29, despite a *non-smoker* .

She survived for 7 yrs with Clinical Trials & Research medicines.

Till she lived, she continued to spread Hope & Advocacy for Research
& to End Smoking Stigma on Lung Cancer in India.

Please remember:

– Anyone with Lungs can get Lung Cancer

– Maximum new Lung Cancer cases in India & globally are non-smokers & female

– Air pollution can also cause Lung Cancer

– Research saves lives.

Best wishes,
Vivek

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Appointed in Advisory Board for Cancer Research by Government of India

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I am so pleased to share that I have been appointed in Advisory Board by Government of India for an ambitious joint Cancer Research project between India and UK

It is an honor as well as huge responsibility to join advisory board and to represent millions of Indian Cancer patients for 10 million pounds (86 crore INR) Cancer Research project between Cancer Research UK (which is the largest cancer research funder in the UK) and Department of Biotechnology, Ministry of Science and Technology, Government of India 🙏.

I am proud to be part of such exceptional advisory panel who have senior leadership of Tata Memorial Hospital, National Cancer Insitiute, AIIMS, King’s college London, University of Cambridge, and University of Oxford.

We the advisory panel met in London to agree the final research challenges for this initiatives. After lots of brainstorming, our bilateral Advisory Panel has set seven research challenges under the theme of affordable approaches to cancer. We are calling on researchers in India and the UK to join forces to tackle these challenges.

Please visit our webpage (link below) which has further information on the initiative, including the scientific remit and eligibility guidelines, our Advisory Panel and our research challenges

https://www.cancerresearchuk.org/funding-for-researchers/our-funding-schemes/affordable-approaches-to-cancer

In honor and love for my wife, my life Kusum Malik Tomar 💕, I hope to continue to make positive impact for our cancer patients and generations to come,
Vivek

Vivek Tomar
Patient Advocate for Lung Cancer, Clinical Research and Timely Access to Latest Treatment in India
National Coordinator – ALK Positive Lung Cancer Global Community

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