The Evolution of My Feminism

I believe our understanding of feminism isn’t something we just read in books; it is something that evolves through life and experience. I grew up surrounded by incredibly strong women.

My grandmother was the first in our extended family of farmers to step out and support the work in the fields, in addition to managing the household and the children. She did this to support my grandfather and ensure her children received the education they needed. Because of her hard work, my father became a lawyer, one uncle became a government school principal, and another uncle decided to pursue farming with better equipment and a better life.

When my father started his legal practice in a new city called Muzaffarnagar, in the state of Uttar Pradesh, we struggled. I still remember living in a distant small town called Shamli, in a single room that served as his office by day and our kitchen and bedroom by night. To help us survive, my mother began giving private tuitions, traveling from home to home while managing our household. Despite the hardships, she never stopped learning. She completed three separate Master of Arts (MA) degrees in an era when education for girls was still a distant dream for many, eventually securing a job as a government school teacher.

It was my mother’s sweat and dedication, alongside my father’s hard work, that allowed my brother and me to build successful lives.

Then, I married Kusum. She was the strongest of all.

Based on my respect for the women in my life, I had developed my own rigid “rules” for what feminism should look like. I thought changing a surname after marriage was wrong. I thought traditions like Karwa Chauth – a festival where a wife fasts and prays for the long life of her husband – were regressive. To “protect” her, I intentionally didn’t have Kusum’s surname changed.

But over time, I noticed something unexpected. In the college where she was working as an Associate Professor, and in many other places, she began signing her name as “Kusum Tomar” instead of Kusum Malik. I realized she wasn’t doing it out of pressure; she was doing it out of love. She loved being a wife; she loved the nuances of our culture, the sindoor, and the rituals.

The biggest lesson came through Karwa Chauth. I used to try to stop her from fasting – initially due to my own understanding of feminism, and later because of her battle with cancer. I would even fast in her place to support her beliefs, after her diagnosis with Cancer. But during her last Karwa Chauth before her death, even though she was very ill, she fought with me because she wanted to keep that fast. It was her choice, her faith, and her way of expressing love.

Those were the moments I realized that my desire to protect her was just the first step. The next step was understanding that true support means honoring her choice. Whether she chose to break a tradition or embrace one, my role was to stand by her and celebrate her.

I feel fortunate to have been shaped by such remarkable women. From my grandmother’s fields to my mother’s classrooms and Kusum’s courageous spirit, I have tried my best to learn from them and to stand with them. Today, I see feminism not just as a set of ideals, but as a deep, evolving respect for the path a woman chooses for herself.

I am proud of that journey, and I will continue to stand with the women who are and will be part of my life – with mutual respect, shared values, equality, support, understanding, and companionship.

Feminism #NariShakti #StrengthOfAWoman #IndianFamilies #LifeLessons #LegacyOfLove #KusumMemorial #GrowthMindset #ChoiceAndDignity #MenForEquality #RespectWomen

Why I Still Do This

People often ask me a question.

“It’s been seven years since you lost your wife to cancer.
Why are you still so deeply involved in helping cancer patients?
Why not move on… live a normal life?”

It’s a fair question.

Losing someone you love to cancer changes you in ways that are hard to explain. The world moves on, but a part of you remains in that hospital corridor, that chemotherapy room, that moment when life feels fragile and uncertain.

Many people assume that after such loss, the healthiest thing to do is to step away from it all. To distance yourself from hospitals, from patients, from the pain that comes with the word cancer.

But the truth is – for me, it works the opposite way.

Every time I think about stepping back, something happens that reminds me why I cannot.

Today, I received a message from a caregiver whose mother was undergoing treatment.

She wrote:

“She was a fighter and the backbone of our family. I would like to thank Vivek Sir from my heart for extending the span of my mother’s life.”

Her mother eventually passed away.

But those words stayed with me.

Not because they thank me – because I know very well that no doctor, researcher, or advocate can extend life on their own. Medicine fights, science tries, and sometimes the disease still wins.

But what matters is time.

Sometimes what we give families is not a cure.

Sometimes what we give them is time.

Time for a daughter to sit with her mother.
Time to celebrate one more birthday.
Time to share one more meal together.
Time to say the things that matter.

And when that time creates even a few more memories for a family – it means everything.

That is why I continue.

Because behind every case file is a family.
Behind every diagnosis is someone’s mother, father, partner, or child.
Behind every extra month or year is a lifetime of memories being created.

Cancer took my wife.

But it also gave me a purpose I cannot ignore. And not only this one message, I have recived hundreds of such messages during this journey.

If by being involved – through advocacy, support, awareness, or research – I can help even one family get a little more time together, then that effort is worth it.

That is why I still do this.

And that is why I probably always will.

Happy Holi

India is celebrating the festival of colours and happiness “Holi”

When Kusum was around, even Cancer was not able stop our fesitivities and happiness…..Keep celebrating the life everyone – each and every day, irrespective of situation.

Happy Holi to you all..May the fesitval of colors bring good health, love and happiness in your life 🫶

“Excellence in Patient Advocacy & Empowerment” Award

On World Cancer Day, I am deeply humbled to recieve the “Excellence in Patient Advocacy & Empowerment” award, presented by the Health Minister of India of last tenure and senior bureaucrat of Government of India, in the presence of esteemed national and international dignitaries in New Delhi.

This recognition comes from my volunteer work as a patient advocate – standing with cancer patients and caregivers, and working towards a more compassionate, accessible, and patient-focused cancer care system in India.

I accept this award on behalf of every cancer patient and caregiver who struggles not just with illness, but with delays, lack of access and affordability – and whose lived experience deserves to be heard, respected, and reflected in health policy.

I remain hopeful that when policymakers return to decision-making forums, the patient voices shared and the conversations we held will continue to inform their choices.

The work continues – with empathy, courage, love, and hope 🙏….and for my Kusum Malik Tomar 💙

#WorldCancerDay #PatientAdvocacy #CancerCare #HealthcareLeadership #UnitedByUnique

Announcing the “Kusum Memorial Cancer Foundation”: A New Chapter in Patient Advocacy & Research

We are proud to announce the official launch of the Kusum Memorial Cancer Foundation – a registered public charitable trust in India dedicated to transforming the cancer care landscape for patients, caregivers, and communities across the country.

stablished in memory of our Kusum Malik Tomar – India’s longest survivor of Stage IV lung cancer of her time, participant of number of clinical trials & research medicines, a patient advocate and co-founder of ALK Positive India, whose courage and resilience continue to inspire our commitment to dignity, hope, and scientific progress for cancer patients and caregivers. This Foundation represents a powerful vision for equitable, compassionate, and research-led cancer care and stronger patient voices in healthcare and policy.

A Mission Rooted in Impact

The Kusum Memorial Cancer Foundation has been established with a clear focus:
to empower cancer patients – especially those affected by lung cancer – with access to the latest treatments, evidence-based information, strong community support, and meaningful engagement in clinical research and policy.

This trust serves as the legal and governance umbrella for initiatives that have long been part of our community’s work and ethos, including:

  • Rise To Survive Cancer – our flagship patient advocacy platform
  • ALK Positive India – India’s first oncogene-focused support group for ALK+ NSCLC patients, established in year 2017
  • The White Ribbon Project – India – a movement to break stigma and drive lung cancer awareness and action, established in year 2025

Vision & Core Focus

At its heart, the Foundation is committed to a future where every cancer patient – regardless of cancer type, genetic profile, or socioeconomic background – has equitable access to cutting-edge treatment, compassionate care, and empowering support systems.

For the Foundation, advocacy is not just a cause — it’s a commitment to elevating patient voices, strengthening clinical research awareness, and influencing policy for long-term systemic change.

Governance & Commitment to Ethics

The Kusum Memorial Cancer Foundation is registered in India as a non-profit, non-commercial charitable trust. All activities are carried out without profit motive, and benefits are open to everyone irrespective of caste, religion, gender, race, or socioeconomic status.

This governance foundation ensures that patient welfare, transparency, and ethical practice remain central to every initiative.

Together, we can ensure that no one has to face cancer alone.

Read more about the Foundation’s vision, details and initiatives:
🔗 Visit the Foundation page on Kusum Memorial Cancer Foundation

Launch of “The White Ribbon Project – India”

Today, Urvashi ji (a Stage IV lung cancer patient, fierce patient advocate, public health expert & a dear friend) and I proudly launch “The White Ribbon Project – India“, a new chapter in Lung Cancer awareness in our country. 🤍

Inspired by the remarkable work of The White Ribbon Project™ in the US, and with deep gratitude to Heidi Nafman Onda and Pierre Onda, we are committed to changing the lung cancer story in India – one ribbon, one voice, one community at a time.

For more information on “The White Ribbon Project – India” and how you can support & participate in this mission, visit:
https://risetosurvivecancer.com/the-white-ribbon-project-india/

In memory of my late wife Kusum Malik Tomar and so many who lost their lives to lung cancer – and for all those like Urvashi ji, who continue to fight with courage – this mission is for you. 🤍

#TheWhiteRibbonProjectIndia
#LungCancerAwareness
#EndTheStigma
#LCSM #LCAM
#LungCancerAwarenessMonth
#AnyOneWithLungsCanGetLungCancer
#RiseToSurviveCancer

With love and hope,
Vivek

Cancer Awareness Campaign with National Media

🎗️For the ongoing Breast Cancer Awareness Month (October) and the upcoming Lung Cancer Awareness Month (November), I had the previlege of joining Aaj Tak & India Today – India # 1 News Network – for a powerful panel discussion on Cancer Awareness — covering Early Detection, Myths vs. Facts, Survivorship, Research, and Representation.

I spoke as a patient advocate (in my volunteer work) and as a caregiver to my late wife & love Kusum, representing the voice of patients – a role that continues to inspire me every single day. 💗

Because awareness isn’t just about knowledge – it’s about empathy, empowerment, and action.
Conversations like these help bridge the gap between medical systems and real human experiences – because every dialogue matters.

#BreastCancerAwareness #LungCancerAwareness #PatientAdvocacy #AwarenessMatters #VoiceOfPatients #CancerAwareness #PublicHealth #AajTak #IndiaToday #RiseToSurviveCancer

Empowering Voices for Lung Cancer Care in Asia at ACLC2025 Vietnam

Grateful to have led “Empowering Voices” – a patient advocacy workshop driving change across Asia at the IASLC’s Asia Conference on Lung Cancer 2025 #ACLC2025 in Vietnam!

When conversations run over time, you know the dialogue is real and impactful.

From our conversations, two key rate-limiting factors in Vietnam’s lung cancer care became clear:
> Communication gaps between patients and providers
> Limited access to medicines

In a recent survey shared during IIT workshop, 78% of Vietnamese patients said they want their caregiver involved in treatment decision-making – yet patient input today remains minimal.

This underscores the urgent need to amplify patient voices, foster open communication, and expand equitable access to life-saving therapies.

Every step toward empowering patients is a step toward better outcomes – and together, we’re moving that needle. 💙

Grateful to my fellow patient advocacy leaders Lillian Leigh (Australia), Caleb (Nigeria), as well as Dr. Giang Nguyen Huong (National Cancer Institute, Vietnam), and IASLC for their partnership and support in making this happen. 🙏

#LCSM #PatientsFirst #CancerCare #HealthEquity #PatientAdvocacy #AnyoneWithLungsCanGetLungCancer

STARS award at World Lung Cancer Conference 2025

Earlier this month in Spain, at the World Conference on Lung Cancer – a gathering of over 7,000 participants from more than 100 countries – I had the incredible honour of becoming the first Indian 🇮🇳 to receive the STARS Award.

This recognition was not just a personal milestone but a moment that represents the growing voice of patients and advocates from India and other low- and middle-income countries (LMICs) on the global stage.

During the conference, I had the privilege to:

~ Participate in panel discussions with leading experts, where I spoke about the realities, challenges, and hopes of patients in India and LMICs.

~ Present my first-ever academic poster at world lung cancer conference : “Advancing Lung Cancer Advocacy in Low- and Middle-Income Countries”, based on important work and studies from the African region.

These moments were humbling reminders of why advocacy matters – to ensure that the voices of patients are heard, their struggles understood, and their needs addressed.

I am deeply grateful to my friends and colleagues across the patient advocacy, medical, biopharmaceutical, and research communities in India and worldwide.

I also extend heartfelt thanks to the International Association for the Study of Lung Cancer (IASLC) for this recognition and for creating such meaningful opportunities for advocates like me.

As India’s first ‘Patient Research Advocate’ in oncology, this award strengthens my commitment to keep pushing forward – to improve lung cancer care, support research, and champion patient advocacy, especially in countries where resources are limited.

This journey is not mine alone – it belongs to every patient, caregiver, and advocate working tirelessly to make a difference. 💙🌍

#WCLC2025 #PatientAdvocacy #ResearchSavesLives #LungCancer #RiseToSurviveCancer #ALKPositiveIndia

In memory and love of Kusum Malik Tomar

Vivek

Faculty at CReDO workshop

Late post…..

Truly honored to be invited as a Keynote Speaker and Faculty at the globally renowned CReDO (International Collaboration for Research Method Development in Oncology) Workshop – an incredible platform shaping the future of cancer research.

It was inspiring to engage with:

  • Hundreds of passionate early-career oncologists, surgeons, radiation oncologists, joined as research students,
  • So great to become faculty along 45 brilliant faculty members from ASCO, The Lancet Oncology, Nature Reviews, Kings’ College London, NCI, IAEA, EORTC, and fellow global patients advocacy leaders,
  • 17 world-renowned biostatisticians,

🌎 Experts & researchers from 20+ countries.

Amidst the breathtaking landscape of Lonavala, we worked together to transform bold cancer research ideas into real studies – because #ResearchSavesLives

Grateful to be part of this journey and to contribute to something bigger than ourselves!

In memory of my wife Kusum Tomar, and to help millions of cancer patients out there in dire need of latest treatment 💙

#CancerResearch
#TogetherForACure
#AdvancingCancerCare