Ecosystem for R&D, Innovation & Start-Up in India

I was invited by FICCI (Federation of Indian Chambers of Commerce & Industry) and Government of India, to become panelist and speaker at “India Pharma 2020 summit in Gandhinagar, Gujarat for an extremely important topic for cancer patients i.e.  “Ecosystem for R&D, Innovation & Start-Up in India

It was an important and unique opportunity as:
– Patients in India has no voice and at such platforms with key stakeholders, patients & their voice are nowhere.
– Esteemed fellow panelist from Government (including India and US (Dr Patrick Kilbride, Sr VP, US chamber of commerce)), senior leaders of Industry (including from Pfizer, Novartis, Cadila etc.) & Academic Researchers (including Director NIPER).

Therefore, I tried my best and ensured to share #Patients Voice to:

> make better eco-system & access to #Research in India.

> make patients as #partner with Govt, Industry, Academics & Clinicians in the system.

Hope they heard patients’ point, loud and clear…and we will see more research in India…Finger crossed!!

 

#Research Save Lives
#KusumVsCancer
#Rise To Survive Cancer
#Losing Is Not An Option

Panel 1Panel 2Panel 3

Reaction of Kusum after taking 1st dose of Research Medicine in Clinical Trial

As you know, my wife & life, Kusum Malik Tomar who was given only 6 months to live, lived 7 years with her stage 4 cancer (was longest survivor of her type of cancer in India) and it was become possible because of research only and those 6 clinical trials/ research medicine.

There is lot of misunderstanding in India about clinical trails. Clinical trials can provide access to new treatmnet and Research medicines, which is life saving in cases like Cancer where time and access to latest treatment is key…….

Therefore, for advocacy and to help patients & family understand about importance of research and clinilca trials, would like to share this link (https://youtu.be/GkhQ4N8WHmA) of 22  seconds video clip of Kusum where she is sharing her experience after taking first dose of research medicine under clinical trial.

# Research Saves Life

# Losing Is Not An Option

# Rise To Survive Cancer

Happy Valentine’s Day 2020

Love is not just about possessions, physical presence or living together; it’s about liberation, creating memories and impacting lives around us. 💕

Today is Valentine’s Day and wishing all the lovely couples out there to create best of memories and cherish love (the most beautiful feeling created by the Almighty) with your loved one 💐🙏 ❤️

On Valentine’s day, social entrepreneur and author of book ‘God Is Not Fair?’ did this podcast (Love, Kal Aaj aur kal) on Kusum and mine love story. Link to listen ths podcast 👇 (Language: Hindi; Duration: 14:35 mins;  also available on Google podcast, Apple podcast, Jio Saavn podcast)

#ValentineDay
#Love
#KusumVsCancer
#GodIsNotFair?

 

Tutorial on how to get Import license for life saving medicines like in cancer, at no cost and on same day

Sad to see gangs cheating patients for thousands of Rupees to obtain Import License of life saving medicines/compassionate program 😞 though India drug regulatory authority CDSCO process is free of cost, online & take mins only.

I have created and published a step-by-step video tutorial on how to get Import License for Life Saving medicines in India, free of cost & possibly on same day. This video tutorial is available on youtube at link👇

https://youtu.be/8qyivWSeMYg

Hope it wll help Cancer & other disease patients like rare disease to save their money & time.

Please do share this tutorial within patients & medical community, to help as much patients as possible🙏

#KusumVsCancer

#LosingIsNotAnOption

#SharingHope

Import license

Kusum & our story is now part of an inspiring book!!

Kusum and our story of fighting with Cancer, shaking India healthcare system, becoming longest survivor in India at Stage 4 for her type of cancer, mental health & saving thousands of patients life is now part of an inspiring book “God Is Not Fair?“.

The book is written by social entrepreneur & wonderful human being Vivek Kumar ……This book is compilation of one of most inspiring 6 life transforming real life stories from India including of Kargil war veteran & India’s first blade runner Major D P Singh , Gauri Sawant – Indian Transgender Activist , survivor & fire safety activist Maneesha Ramakrishnan, Cancer Awakens #PrafullaAgnihotri and author Vivek Sharma, who once himself attempted suicide after painfully loosing his young son but now tirelessly working for prevention of suicide amongst youth.

It is an honor to feature along with such an motivating personalities & stories.

Please note that the proceeds of the book will go to the foundation to support ongoing activities and scale the “prevention of suicide amongst youth” cause.

The book is available on all major leading book stores in India and also on Amazon India at link: https://www.amazon.in/…/…/ref=cm_sw_r_wa_apa_i_c9bfEbCCDZHKQ

#KusumVsCancer

#godisnotfair

#SharingHope

“#KusumVsCancer – Celebration of Life” from 9-Jan-2020 to 9-Feb-2020

It will be one year on 5th Feb 2020, since my love, my wife, my life, Kusum left this world. Kusum who did not succumb to Cancer and not only survived but lived the life, a legendary life……Such life needs celebration “Celebration of Life”.

Therefore, from 9-Jan-2020 (today) to 9-Feb-2020, in memory and honor of Kusum, we are starting with “#KusumVsCancer – Celebration of Life” while sharing her journey, memories, work and also raising awareness of Cancer, Research, Patient Advocacy, Hope, Love.

“#KusumVsCancer – Celebration of Life” from 9-Jan-2020 to 9-Feb-2020

“Tribute Ceremony” on 9-Feb-2020

Kusum aka Vibha aka KusumVsCancer:

  • age 27, never smoker, mother of 3 yr old
  • diagnosed with stage 4 Lung Cancer (in both Lungs) with cancer in Brain (32 mets), Bones, Spinal Cord, Ovaries, Adnexa, Abdomen
  • no medicine ever gave more than 30% response/ reduction in her cancer…was never became cancer free during the treatment
  • given 6 months to live, but celebrated 6 Cancerversary (7 year survival)
  • was longest survivor at Stage 4 in India for her rare type of Cancer
  • participated in 5 clinical trials/ research medicines
  • 1st patient from India to participate in two latest research treatment
  • led with me, to bring many latest treatment in India & saved hundreds of Indian patients life
  • co-founded with me, India’s 1st oncogene focused lung cancer patients support group

In love and memory of Kusum,

Vivek

#KusumVsCancer

Run for Lung Cancer Awareness Month

Today we father-son duo run in Manesar half-marathon to bring India’s attention to “Lung Cancer Awareness Month“…Yes, November is Lung Cancer Awareness Month!!

Please note:

– Majority of new lung cancer cases are “non-smokers

India urgently need Access to Research & latest Treatment for Lung Cancer, to help survive the patients & our loved ones, as Lung Cancer is leading cause of death globally and India….

In memory & honor of our loving and the legendary “Kusum Malik Tomar”,

#LCAM

Suryansh Tomar & Vivek Tomar