ALK Positive Lung Cancer and India

Lung Cancer – a cancer with highest mortality across the world but comparative less research and options.

Lung cancer – a cancer with stigma of smoking disease however majority of newly diagnoses cases are non-smokers.

Lung cancer – for which, there is not a single NGO in India unlike many for Breast Cancer, Blood cancer etc. The picture in world is not much different. 

Kusum is having a rare type of Lung Cancer which is Non-Small Cell Lung Cancer (NSCLC) with Anaplastic Lymphoma Kinase (ALK) gene mutation/rearrangement.

To understand Lung cancer & ALK mutation – There are two major types of lung cancer, non-small cell lung cancer (NSCLC) and small cell lung cancer (SCLC).

Non-small cell lung cancer accounts for about 85 percent of lung cancers and includes:

  • Adenocarcinoma;
  • Squamous cell carcinoma;
  • Large cell carcinoma

In Adenocarcinoma, there are multiple type of mutations and ALK is one of them.

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We do have a global group of ALK positive patients , where three tenets group members live by are Information, Support, and Empathy, no matter where one may be.  The group uphold these by providing Worldwide Information about ALK lung cancer to each other. The group members (ALK+ve patients and caregivers) support one another around the globe to improve our physical and emotional well being; and  having Empathy towards each other because we are all on this journey together, no matter where we live.

We do also have India chapter of global group that supports each other on all local needs.

If you know anyone with ALK+ve NSCLC, please direct them to or Are you a patient or caregiver of someone with ALK+ Lung Cancer?

If Yes – please Join Us!!!

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Deilats of ALK Lung Cancer patients and caregiver support group:

– Global group website: https://www.alkpositive.org/

– Global group facebook page for ALK patients and caregivers: https://www.facebook.com/groups/ALKPositive/

– India ALK patients whatsapp group: +91 8447013440 (only whatsapp active, no incoming or outgoing calls)

– India group facebook page for ALK patients and caregivers: https://www.facebook.com/groups/ALKPositiveIndia/

– India ALK group email id: alk.positive.india@gmail.com