Why I Still Do This

People often ask me a question.

“It’s been seven years since you lost your wife to cancer.
Why are you still so deeply involved in helping cancer patients?
Why not move on… live a normal life?”

It’s a fair question.

Losing someone you love to cancer changes you in ways that are hard to explain. The world moves on, but a part of you remains in that hospital corridor, that chemotherapy room, that moment when life feels fragile and uncertain.

Many people assume that after such loss, the healthiest thing to do is to step away from it all. To distance yourself from hospitals, from patients, from the pain that comes with the word cancer.

But the truth is – for me, it works the opposite way.

Every time I think about stepping back, something happens that reminds me why I cannot.

Today, I received a message from a caregiver whose mother was undergoing treatment.

She wrote:

“She was a fighter and the backbone of our family. I would like to thank Vivek Sir from my heart for extending the span of my mother’s life.”

Her mother eventually passed away.

But those words stayed with me.

Not because they thank me – because I know very well that no doctor, researcher, or advocate can extend life on their own. Medicine fights, science tries, and sometimes the disease still wins.

But what matters is time.

Sometimes what we give families is not a cure.

Sometimes what we give them is time.

Time for a daughter to sit with her mother.
Time to celebrate one more birthday.
Time to share one more meal together.
Time to say the things that matter.

And when that time creates even a few more memories for a family – it means everything.

That is why I continue.

Because behind every case file is a family.
Behind every diagnosis is someone’s mother, father, partner, or child.
Behind every extra month or year is a lifetime of memories being created.

Cancer took my wife.

But it also gave me a purpose I cannot ignore. And not only this one message, I have recived hundreds of such messages during this journey.

If by being involved – through advocacy, support, awareness, or research – I can help even one family get a little more time together, then that effort is worth it.

That is why I still do this.

And that is why I probably always will.

Announcing the “Kusum Memorial Cancer Foundation”: A New Chapter in Patient Advocacy & Research

We are proud to announce the official launch of the Kusum Memorial Cancer Foundation – a registered public charitable trust in India dedicated to transforming the cancer care landscape for patients, caregivers, and communities across the country.

stablished in memory of our Kusum Malik Tomar – India’s longest survivor of Stage IV lung cancer of her time, participant of number of clinical trials & research medicines, a patient advocate and co-founder of ALK Positive India, whose courage and resilience continue to inspire our commitment to dignity, hope, and scientific progress for cancer patients and caregivers. This Foundation represents a powerful vision for equitable, compassionate, and research-led cancer care and stronger patient voices in healthcare and policy.

A Mission Rooted in Impact

The Kusum Memorial Cancer Foundation has been established with a clear focus:
to empower cancer patients – especially those affected by lung cancer – with access to the latest treatments, evidence-based information, strong community support, and meaningful engagement in clinical research and policy.

This trust serves as the legal and governance umbrella for initiatives that have long been part of our community’s work and ethos, including:

  • Rise To Survive Cancer – our flagship patient advocacy platform
  • ALK Positive India – India’s first oncogene-focused support group for ALK+ NSCLC patients, established in year 2017
  • The White Ribbon Project – India – a movement to break stigma and drive lung cancer awareness and action, established in year 2025

Vision & Core Focus

At its heart, the Foundation is committed to a future where every cancer patient – regardless of cancer type, genetic profile, or socioeconomic background – has equitable access to cutting-edge treatment, compassionate care, and empowering support systems.

For the Foundation, advocacy is not just a cause — it’s a commitment to elevating patient voices, strengthening clinical research awareness, and influencing policy for long-term systemic change.

Governance & Commitment to Ethics

The Kusum Memorial Cancer Foundation is registered in India as a non-profit, non-commercial charitable trust. All activities are carried out without profit motive, and benefits are open to everyone irrespective of caste, religion, gender, race, or socioeconomic status.

This governance foundation ensures that patient welfare, transparency, and ethical practice remain central to every initiative.

Together, we can ensure that no one has to face cancer alone.

Read more about the Foundation’s vision, details and initiatives:
🔗 Visit the Foundation page on Kusum Memorial Cancer Foundation