We are proud to announce the official launch of the Kusum Memorial Cancer Foundation – a registered public charitable trust in India dedicated to transforming the cancer care landscape for patients, caregivers, and communities across the country.
stablished in memory of our Kusum Malik Tomar – India’s longest survivor of Stage IV lung cancer of her time, participant of number of clinical trials & research medicines, a patient advocate and co-founder of ALK Positive India, whose courage and resilience continue to inspire our commitment to dignity, hope, and scientific progress for cancer patients and caregivers. This Foundation represents a powerful vision for equitable, compassionate, and research-led cancer care and stronger patient voices in healthcare and policy.
A Mission Rooted in Impact
The Kusum Memorial Cancer Foundation has been established with a clear focus:
to empower cancer patients – especially those affected by lung cancer – with access to the latest treatments, evidence-based information, strong community support, and meaningful engagement in clinical research and policy.
This trust serves as the legal and governance umbrella for initiatives that have long been part of our community’s work and ethos, including:
- Rise To Survive Cancer – our flagship patient advocacy platform
- ALK Positive India – India’s first oncogene-focused support group for ALK+ NSCLC patients, established in year 2017
- The White Ribbon Project – India – a movement to break stigma and drive lung cancer awareness and action, established in year 2025
Vision & Core Focus
At its heart, the Foundation is committed to a future where every cancer patient – regardless of cancer type, genetic profile, or socioeconomic background – has equitable access to cutting-edge treatment, compassionate care, and empowering support systems.
For the Foundation, advocacy is not just a cause — it’s a commitment to elevating patient voices, strengthening clinical research awareness, and influencing policy for long-term systemic change.
Governance & Commitment to Ethics
The Kusum Memorial Cancer Foundation is registered in India as a non-profit, non-commercial charitable trust. All activities are carried out without profit motive, and benefits are open to everyone irrespective of caste, religion, gender, race, or socioeconomic status.
This governance foundation ensures that patient welfare, transparency, and ethical practice remain central to every initiative.
Together, we can ensure that no one has to face cancer alone.
Read more about the Foundation’s vision, details and initiatives:
🔗 Visit the Foundation page on Kusum Memorial Cancer Foundation
Rise To Survive Cancer 
Hello Sir,
I recently watched your Josh Talks YouTube video. It was deeply inspiring, and I am truly sorry for your loss. Your journey and strength give hope to families like ours who are navigating this difficult path.
My mother has been diagnosed with gallbladder cancer (Stage 3B) in late November 2025. The disease was considered non-operable as it had spread to the liver wall and nearby lymph nodes. She is 63 years old and has currently completed three cycles of chemotherapy. Thankfully, she is recovering well and is able to live a somewhat normal daily life at the moment.
In December 2025, the doctors gave us a prognosis of around 6 to 18 months, with an average expectation of about one year. Her histopathology report shows that the tumor is MMR-proficient and HER2-negative. Based on this, the doctors advised against immunotherapy, citing high cost and limited expected benefit.
I wanted to seek your guidance on what steps we could consider next. Are there any clinical trials or newer treatment approaches for gallbladder cancer that we should explore? Any direction or advice from your experience would mean a great deal to us.
If possible, I would be grateful to connect with you and your team if there is a suitable way to reach you.
Thank you for all the work you are doing for cancer patients and caregivers. It truly matters.
Regards,
Navneet Singh Chauhan
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